Federação Associações Portuguesas Paralisia Cerebral

Documentos

Formulário PVNPC5a

Relatórios

Paralisia Cerebral em Portugal no Século XXI - crianças nascidas entre 2001 e 2010.

Vigilância Nacional da Paralisia Cerebral aos 5 anos - crianças nascidas entre 2001 e 2007, 2º edição.

Vigilância Nacional da Paralisia Cerebral aos 5 anos - crianças nascidas entre 2001 e 2003.

Paralisia Cerebral aos 5 anos de idade em Portugal - crianças nascidas em 2001.

Classificações

Sistema de Classificação das competências para comer e beber (EDACS)

Gross Motor Function Classification System (GMFCS)

Manual Ability Classification System (MACS)

Viking Speech Scale (Viking)

Publicações científicas com participação do PVNPC5a

Trends in Prevalence and Severity of Pre/Perinatal Cerebral Palsy Among Children Born Preterm From 2004 to 2010: A SCPE Collaboration Study

Arnaud C., Ehlinger V., Delobel-Ayoub M., Klapouszczak D., Perra O., Hensey O., Neubauer D., Hollódy K., Virella D., Rackauskaite G., Greitane A., Himmelmann K., Ortibus E., Dakovic I., Andersen G.L., Papavasiliou A., Sellier E., Platt M.J., Krägeloh-Mann I; Frontiers in Neurology, 12, art. no. 624884. doi : 10.3389/fneur.2021.624884. Epub 2021 May 20.


Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study

Sellier E., Goldsmith S., McIntyre S., Perra O., Rackauskaite G., Badawi N., Fares A., Smithers-Sheedy H., Ego A., Tronc C., Arnaud C., Delobel M., Mc Manus V., Lyons A., McConnel K., Himmelmann K., Pahlman M., Hensey O., Dowding V., Kurinczuk J., Laursen B., Torrioli M.G., Marcelli M., Andersen G.L., Julsen Hollung S., Bottos M., Gaffney G., de la Cruz J., Pallas C., Neubauer D., Radsel A., Virella D., Folha T., Greitane A., Hollody K., Csabi G., Dakovic I., Sigurðardóttir S., Einarsson I., Haberlandt E., Ortibus E., Franki I., Mejaski-Bosnjak V., Kuenzle C., Tscherter A., Attard S., Papavasilou A., Horridge K., Platt M.J., Krägeloh-Mann I., Horber V., Auld M., Badawi N., Blair E., Diviney L., Gibson C., Gibson N., Goldsmith S., Gration D., Hernandez J., Langdon K., Love S., Maloney E., Martin T., Kay F., O’Grady G., Reddihough D., Reid S., Scott H., Watson L; Developmental Medicine and Child Neurology, 63 (6), pp. 712 - 720. doi : 10.1111/dmcn.14827. Epub 2021 Feb 2.


Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study

Goldsmith S., McIntyre S., Scott H., Himmelmann K., Smithers-Sheedy H., Andersen G.L., Blair E., Badawi N., Garne E., Barisic I., Bosnjak Mejaski V., Amar E., Sellier E., Hollung S.J., Klungsøyr K., Braz P., Virella D., Gibson C., Källén K., Reid S.M., Baynam G., Gration D., Hansen M., Watson L., Uldall P; Developmental Medicine and Child Neurology. doi : 10.1111/dmcn.14805. Epub 2021 Jan 11.


Access to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differences

Himmelmann K., Påhlman M., Andersen G.L., Vik T., Virella D., Horridge K., Neubauer D., Arnaud C., Rackauskaite G., De La Cruz J; Neuropediatrics, 51 (2), pp. 129 - 134. doi : 10.1055/s-0040-1701659. Epub 2020 Mar 2.


The Origin of the Cerebral Palsies: Contribution of Population-Based Neuroimaging Data

Horber V., Sellier E., Horridge K., Rackauskaite G., Andersen G.L., Virella D., Ortibus E., Dakovic I., Hensey O., Radsel A., Papavasiliou A., Cruz De La J., Arnaud C., Krägeloh-Mann I., Himmelmann K; Neuropediatrics, 51 (2), pp. 113 - 119. doi : 10.1055/s-0039-3402007. Epub 2020 Mar 2.


MRI classification system (MRICS) for children with cerebral palsy: development, reliability, and recommendations.

Himmelmann K, Horber V, De La Cruz J, Horridge K, Mejaski-Bosnjak V, Hollody K, Krägeloh-Mann I; SCPE Working Group. Dev Med Child Neurol. 2017 Jan;59(1):57-64. doi: 10.1111/dmcn.13166. Epub 2016 Jun 21.


Decreasing prevalence in cerebral palsy: a multi-site European population-based study, 1980 to 2003.

Sellier E, Platt MJ, Andersen GL, Krägeloh-Mann I, De La Cruz J, Cans C; Surveillance of Cerebral Palsy Network. Dev Med Child Neurol. 2016 Jan;58(1):85-92. doi: 10.1111/dmcn.12865. Epub 2015 Aug 28.


Classification systems of communication for use in epidemiological surveillance of children with cerebral palsy.

Virella D, Pennington L, Andersen GL, Andrada Mda G, Greitane A, Himmelmann K, Prasauskiene A, Rackauskaite G, De La Cruz J, Colver A; Surveillance of Cerebral Palsy in Europe Network. Dev Med Child Neurol. 2016 Mar;58(3):285-91. doi: 10.1111/dmcn.12866. Epub 2015 Aug 14.


Clinical features of cerebral palsy in children with symptomatic congenital cytomegalovirus infection.

Dakovic I, da Graça Andrada M, Folha T, Neubauer D, Hollody K, Honold M, Horber V, Duranovic V, Bosnjak VM. Eur J Paediatr Neurol. 2014 Sep;18(5):618-23. doi: 10.1016/j.ejpn.2014.04.007. Epub 2014 Apr 15.


Development of The Viking Speech Scale to classify the speech of children with cerebral palsy.

Pennington L, Virella D, Mjøen T, da Graça Andrada M, Murray J, Colver A, Himmelmann K, Rackauskaite G, Greitane A, Prasauskiene A, Andersen G, de la Cruz J. Res Dev Disabil. 2013 Oct;34(10):3202-10. doi: 10.1016/j.ridd.2013.06.035. Epub 2013 Jul 24.


Gastrostomy tube feeding of children with cerebral palsy: variation across six European countries.

Gastrostomy tube feeding of children with cerebral palsy: variation across six European countries. Dahlseng MO, Andersen GL, DA Graca Andrada M, Arnaud C, Balu R, De la Cruz J, Folha T, Himmelmann K, Horridge K, Júlíusson PB, Påhlman M, Rackauskaite G, Sigurdardottir S, Uldall P, Vik T; Surveillance of Cerebral Palsy in Europe Network. Epub 2012 Jul 31.